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because it wasn't as important as going on Saturday afternoons to the roller rink.. I have no idea how I was lucky enough to survive"At the age of 21 she had a "full-blown stroke" and today has residual paralysis" Soon her sister's health also declined with increasing arrhythmias"[Laurie] spiraled out of control and we were told she was in heart failure" said Salberg who at the time was eight months pregnant with her daughter "I promised to take care of her two kids""Standing next to Laurie's bed watching her struggle for breath I wondered if the baby I was carrying was also affected" said Salberg "I thought 'I can't die now -- I am too busy to die'"After suffering heart failure herself after the birth of her son Salberg began to search the Internet "looking for answers"In 1996 she founded the HCMA Since then Salberg has worked with more than 5000 families "from birth to 95" and in 45 countries"We've saved thousands of lives helping people get identified and are now working on legislative approaches"The association offers a tool to determine who in the family might have HCM and how to assess for risk of sudden cardiac arrest"Our knowledge changes day by day and you have to maintain follow-up and be educated" Salberg said "The patient needs to know the risks over time"Today Salberg her daughter and her nephew all wear an that can shock a failing heart back to life They are also on medicationSalberg testified for a 2007 task force report in which three of the nine recommendations were turned into legislation called which was signed into law in September It requires that every New Jersey school public and private be equipped with an AED Schools must also establish emergency action plans for responding to sudden cardiac arrest events and training for school officials and coaches on how to operate AEDsThe new law was named for an 11 year-old who collapsed and died of sudden cardiac arrest in 2006Salberg is still pushing for drills to educate students and school responders "We are not prepared for cardiac arrest when it happens" she said "It's the most common way to die and we don't drill for it .We have fire drills and armed invader drills You are far more likely to have a child die in a school from sudden cardiac arrest than from a bullet or fire"Salberg recommends that insurance pay for routine pre-certification physicals for athletes that are typically done today in schools but not for universal testing specifically for HCM She agrees with the medical experts"There is a lot of talk about athletes and sudden death and it's a complete and utter myth to go down that path" she said "Eighty percent of the kids we lose under 24 are non-athletes It's no panacea and even if you screen all high school students there are false positives and false negatives"You are taking the resources away from those who need it giving it to those who don't" With HCM,Goyard St Louis,It's a shame that the display isn't sharper. and it sometimes pokes at my stomach when sitting. her mother asked her,Goyard Tote, "I remember it vividly,Goyard totes, Oh! there's a fourth contestant. so eventually I just consciously decided to lie and to say that I had been abused and repeat these crazy things I had heard. now adult men in their 30s.
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